Monday, March 7, 2011

Isn't that what elderly people get????

Soooooo........I have pneumonia.  That sounds kinda weird when I say it.  Pneumonia.....yep, still weird.  Isn't that something elderly people get??  The good news is that it's not catching.  So Ayla and Steven are all good.  It started as agonising pain near my left scapula on the last night of my Mummy time in Melbourne. know that whole Osteopath thing......yep, wrong doctor!  That ridiculous amount of pain didn't really have a whole lot to do with my ribs (they all cracked and creaked when they should have) but with those little things called lungs that are underneath.  I think the 2 days of 40+ degree temps kinda tipped me off :).

I've had heaps of time in bed.  I can't believe that in the first week I was so ill that I didn't even want to knit.  That's REALLY sick!  This week I have been knitting but that little guilt ridden person inside keeps saying, "Don't ya have some packing to do??......and some washing???? ya can pack?" ....I swear that voice has an Irish accent.....or maybe it's the drugs....for the pneumonia!

Hmmmm.....holidays are coming and I think I seriously need them.  2 weeks of beach and 1 week with my Mummy.  Just what the doctor ordered!

Friday, March 4, 2011

Nothing Left to Do

I've been following Schuyler's Monster Blog for around 3 1/2 years now.....since we received Ayla's diagnosis and were given a name for it.  Rob refers to Schuyler's PMG as a monster that lives lurking behind his daughter's eyes.  The kind of monster that wants to strike his daughter down with the devastating seizures that are part of the symptom picture for Polymicrogyria for around 85 - 90% of those who have it.

Schuyler's case has always seemed to me to be the Fairytale of the PMG least from the seizure point of view.  She's been my beacon of light.  I tended to think about the possibility of Ayla and seizures and then think, "Schuyler's 11 and she hasn't had any yet.  Ayla might be lucky too."

And then tonight I read Rob's new post.  And tonight I'm thinking differently.  Tonight I'm thinking.....

"My beacon's gone and that fucking monster is coming for my kid".

And now there's nothing left to do but let the tears of realisation fall.

Tuesday, March 1, 2011

Mummy Time

I went away to Melbourne on the weekend to visit a long time friend.  We both had some Mummy time together.  We haven't seen each other (without children in tow) in around 6 years.  I have just realised that we enjoyed each other's company and conversation so much that neither one of us even thought to take a photo!  I can't believe it.  It's ok though, because I don't think either of us will forget this visit, EVER.

We stayed at a lovely hotel, The Grand Hyatt, on Collins St, shopped and lunched on Bridge Road and in the City, and had the most amazing dinner at Neil Perry's Spice Temple...see I'm trying to give linkys to make up for the distinct lack of photos :).  And although our dinner at Spice Temple was one of the highlights.....unfortunately it isn't what made it unforgettable.  Somehow, I managed to pop 4 of my ribs and woke in the middle of the night in agonising pain and unable to breathe...I'm giggling now because I am feeling better....  I made it through the night by doing yoga stretches all through the night in the bathroom so I wouldn't wake my friend and after each little 'middle of the night' yoga session there was a little relief so I could get another 30 mins sleep, but by morning......Yeah, there was no salvaging me.  I was a wreck.  My poor friend spent the morning on the phone cancelling an appointment we had and trying to find me an Osteopath in the city.

I had to wait until 10.30 for the appointment but it was definitely worth it.  Oh, to breathe again!  Just 1 rib left to get back in and hopefully that will happen this afternoon.  Feeling heaps better today apart from not being able to take a full breath, cough, sneeze, yawn....possibly fart, I haven't tried that yet (sorry, in my house farts are funny).

Although I wasn't 100% well for the weekend I had a wonderful time just being me.