Tuesday, January 17, 2012

We Watch, We Wait, We Try New Stuff

It's been so long since I have blogged....with Steven being away at college and my work picking up something had to give.  But Steven is home now.....and I feel a need to write a little something.

We have been asking the question for months now, "Is Ayla having seizures or not?"  We thought Yes....and then we thought No.....and now we KNOW that Yes, she is having seizures. 

Around 6 weeks ago we had an overnight hospital visit for a Sleep EEG and a phone call from the paediatrician this morning confirmed that they are in fact seizures.  I feel 2 things about this....

2.  Well, wasn't that lucky that Ayla had a seizure while she was hooked up.

Both of these were not the reaction I was expecting even of myself...but there you go.  What are ya gonna do?

So we keep doing what we're doing and trial a new medication....cos clearly the last one isn't working!  Poor kid is still having nightly seizures and we have noticed a little activity during the day for the last week or so which is highly unusual as her seizures are normally associated with her sleep....double bugger.  So we watch, we wait and we try new stuff.


Renée M-B. said...

thinking of you xx

Carrie said...

I hope that now that you KNOW it is seizures that they can actually HELP you to manage them better! all the best Carrie

Susan, Mum to Molly said...

Thanks for the update Melissa, I'v ebeen wondering how you are going.

Sorry to hear that Ayla is a confirmed member Club Seizure...

Really hope you'll find a medication to control them soon.

And if you're looking for resources, Epilepsy Action is very good.

As is the book: Seizures and Epilepsy in Childhood (Johns Hopkins Press, 2nd Ed.).

Take care, Susan

S said...

yep bugger.